Aged one, Helena is struggling to breathe and her parents are considering heart surgery after several "trial and error' procedures in Australia.
'If we don't go through with the (chest) surgery, she will continue to have the compressed airway and in blunt honesty, we aren't too sure how long her little body could continue on working so hard to breathe," said Jaime.
Both Jaime and Jakob are almost six foot tall and had no idea they both carried the same dwarfism gene until a scan during pregnancy revealed the condition.